Suffolk and North East Essex M.E. and CFS Service Development

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Patient Resources

 M.E. Charities and Organisations

  • M.E. Association
  • Physio's for M.E.
  • Action for M.E.
  • #MEPedia
  • Tymes Trust
  • 25% M.E. Group


M.E. Symptom Diagram



ME Association - Severity & Disability Scales

Pacing Guides


  • Emerge Australia: Stop, Rest, Pace (PDF)
  • #MEAction: Pacing and Management (PDF)
  • M.E. Awarences NZ: The Art and Science of Pacing
  • Physio's for M.E.: Symptom Contingent Pacing
  • ME Association: Summary of NICE Guidance on Energy & Activity Management
  • ME/CFS South Australia: Pacing

Activity and Symptom Diaries

  • Emerge Australia: Activity-Symptom Tracker Template (PDF)
  • World Physiotherapy: Activity Diary (PDF)

Pacing with a Heart Rate Monitor

  • Workwell: Activity Management with a Heart Rate Monitor (PDF)
  • Emerge: Pacing with a Heart Rate Monitor Factsheet (PDF)
  • Physio's for M.E.: Pacing with a Heart Rate Monitor

Apps

  • Visible: Activity Tracking for M.E. and Long Covid - iOS and Android, free
  • Flaredown: Chronic Illness Symptom Tracker - iOS and Android, free
  • ME/CFS Pacing app - emerge Australia
  • Insight Timer: Meditation, Talks, Music - iOS and Android, extensive free tier

Resource Lists


  • Workwell Foundation
  • Open Medicine Foundation 
  • ME/CFS South Australia 









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This website has been set up by Patients and Carers to keep you in touch with the development of ME and CFS Services in Suffolk and North East Essex.

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  • ▼  2023 (2)
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