On the local NHS Let's Talk SNEE there is a short section on M.E. and CFS Services and the opportunity for you to make further comment.
The emphasis is on how the NHS plans to make a difference to people in our area with M.E. and CFS. Here is the link:
Draft Joint Forward Plan: Stay Well - M.E. and CFS
There isn't long to comment, the public engagement period ends on the 22nd of February 2023.
19 February 2023
Our local NHS Integrated Care Board (ICB) for Suffolk and North East Essex has published their Draft Joint Forward Plan. This plan describes how the ICB plans to arrange and provide services to meet the health needs of people in Suffolk and North East Essex (SNEE) over the next 5 years
M.E. and CFS has been included as a priority under the "Stay Well" domain on page 4 of the Executive Summary of the Draft Joint Forward Plan. The priorities are:
The Let's Talk SNEE webpage has more information including the full version of the Draft Joint Forward Plan , and ME and CFS are included in more detail under Section 6.7.8 on page 157. As part of the Co-production Team we had input into the wording of the M.E. and CFS section of the Plan.
We are very pleased that M.E. and CFS have been included as a priority in the Plan. There are very longstanding inequalities of care in our area, especially for the severely affected which we would like to see addressed.
On the Let's Talk SNEE webpage there is an opportunity to feedback your thoughts on the Draft Joint Forward Plan. If you prefer audio there is a short YouTube clip about 2 minutes long explaining the role of the ICB and the purpose or the Joint Forward Plan. It is pretty dry stuff, but the Plan is very important in establishing the shape of healthcare in our area over the next 5 years. The level of funding which will be available to meet all the priorities is another matter though!
However, do comment if you can, or if you prefer you can message us, anonymously if you prefer, using the "Contact" page and we will pass on your thoughts to the ICB.
4 February 2023
